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Primary Sclerosing Cholangitis (PSC)

Transplants | Last Active: Jun 10 6:35am | Replies (93)

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@jacinta, Here is a link to a featured patient with PSC and living donor. You can find her full story there. Very inspiring!



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Replies to "@jacinta, Here is a link to a featured patient with PSC and living donor. You can..."

Rosemary. Thanks for all your help on this website. I'm not really good at navigating around it 

@jacinta, It is my pleasure to help you. I am actually extremely happy to meet, you, another person with PSC. (although I am sorry that you have it) I felt completely alone with the diagnosis. It wasn't until I was became a patient at Mayo that I realized that I was not the only one with it, and that the doctors were experienced with it. too. It is 8 years since my transplant, and the only people who I have encountered are here on Connect.

-If you want to navigate the site, there is a dark grey area at the bottom of this page. And if you click on the "Get Started on Connect" you will find some helpful tips and directions. https://connect.mayoclinic.org/get-started-on-connect/

-Another easy way is to click on the DISCUSS label on the top left.
-You can click GROUPS -which lists all of our discussion groups, even Transplant. You can scroll thru the ongoing discussions, and join in, or simply read.
-You can click on PAGES and you can access the many related Pages that are written by the staff. I sent you the Transplant page yesterday.

We are here on Connect to support each other and to share from our experiences. I want you to feel welcome here with any questions or comments.
I am trying to imagine your disappointment at having passed your scheduled original surgery date. I hope that the next month passes easily for you. From my experience, time almost stood still as I was waiting for the Call for my transplant. I look forward to learning from you about the living donation process. Which Mayo Campus are you going to go to? How are you feeling?


Clinic at Rochester