← Return to Primary Sclerosing Cholangitis (PSC)
DiscussionPrimary Sclerosing Cholangitis (PSC)
Transplants | Last Active: Jun 10 6:35am | Replies (93)Comment receiving replies
Replies to "@jacinta, Here is a link to a featured patient with PSC and living donor. You can..."
@jacinta, It is my pleasure to help you. I am actually extremely happy to meet, you, another person with PSC. (although I am sorry that you have it) I felt completely alone with the diagnosis. It wasn't until I was became a patient at Mayo that I realized that I was not the only one with it, and that the doctors were experienced with it. too. It is 8 years since my transplant, and the only people who I have encountered are here on Connect.
-If you want to navigate the site, there is a dark grey area at the bottom of this page. And if you click on the "Get Started on Connect" you will find some helpful tips and directions. https://connect.mayoclinic.org/get-started-on-connect/
-Another easy way is to click on the DISCUSS label on the top left.
-You can click GROUPS -which lists all of our discussion groups, even Transplant. You can scroll thru the ongoing discussions, and join in, or simply read.
or
-You can click on PAGES and you can access the many related Pages that are written by the staff. I sent you the Transplant page yesterday.
We are here on Connect to support each other and to share from our experiences. I want you to feel welcome here with any questions or comments.
I am trying to imagine your disappointment at having passed your scheduled original surgery date. I hope that the next month passes easily for you. From my experience, time almost stood still as I was waiting for the Call for my transplant. I look forward to learning from you about the living donation process. Which Mayo Campus are you going to go to? How are you feeling?
Rosemary
Clinic at Rochester
Rosemary. Thanks for all your help on this website. I'm not really good at navigating around it