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Primary Sclerosing Cholangitis (PSC)

Transplants | Last Active: Jun 10 6:35am | Replies (93)
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@jacinta

I have in since 1989. I have had many ERCPs over the years. The worst part is the constant scratching with no relief

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Rosemary, Volunteer Mentor | @rosemarya | Aug 21, 2017

I know that we are all different, and I had a deceased donor liver, but I will share that I had very good surgery results and great follow-up at Mayo. I was in hospital for 6 days after surgery. And on my way home (800 miles) on post transplant day 21. They are used to doing post transplant monitoring from a distance, and it is very satisfactory for us.

I hope that all proceeds smoothly for you. When is your appointment?
Rosemary

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sisle | @sisle | May 31 1:42am

I have tried a whole lot of meds, and ended up with the miracle worker Rifampicin. 1x150mg a day keeps the itching away!

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