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Primary Sclerosing Cholangitis (PSC)

Transplants | Last Active: Jun 10 6:35am | Replies (93)

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@jacinta, I remember when I heard of my diagnosis of PSC, I thought that my world was falling apart. I had never even heard of it. And since I felt 'normal' I was completely confused, as well as frightened.

How long have you had this diagnosis? How are you feeling?

Please let me know if I can be of any assistance with PSC questions.

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Replies to "@jacinta, I remember when I heard of my diagnosis of PSC, I thought that my world..."

I have it since 1989. I’ve been very sick over the years.

I rescheduled my appointment for 30 October

@jacinta, I am sorry for you to be feeling sick. But, unfortunately that is the course of the PSC journey. I hope that the time until your appointment passes easily for you.

When I was waiting for my transplant, I used to 'dream' about my life after the transplant - what I wanted to do, where I wanted to go, etc.

Jacinta, What are some of your 'dreams' your life after the transplant?


You asked me about my dreams after transplant and I never answered it. I love life. I have done a lot of traveling throughout the world. Love my job, but I am going to retire next year to enjoy golfing and riding that big Harley of mine.

@jacinta, Wow! What an exciting future, and what fun awaits you!! (my brother and wife are Harley owners, so I can feel your excitement) My dream was to be able to go hiking again. I am happy to add that I am living my dream, too!

I look forward to hearing more from you as you move closer to the big day.