Does anyone have a solution to help manage Reclast side effects?

@carolgrandma Yes, Actually it was 2 years as of June 2026! It started with flu like symptoms, which I felt okay with. Within two days my shoulders and left foot started to hurt to the point they would wake me out of a sound sleep and standing on my left foot I would end up falling if I moved very fast. Within months it went into my rib cage and lower back along with a constant nausea feeling and eventually into both hip, groin pain and blurred vision. I continue physical therapy bi-weekly and try to stay busy most days. People kept thinking I was having a heart attack when my hip would flare up; a lot like an electrical shock and that is where I am at today. I go in September to see if my bone density test shows any improvement but I refuse Any future medication. I ask myself why I’m even thinking of going to my endocrinologist and only answer is that I want to see if the infusion provides better bone density scores. Does it really matter, not really because future infusion is out of the question. That stuff I feel is like putting poison into my body and the doctor say that there is no way the infusion caused these symptoms. Well, prior I did not have these issues and have only broken my nose once during an automobile accident.

@carolgrandma I too did the exact same thing, putting all my trust into a doctor that I trusted but he himself really knows little about the potential side effects! Sent me to a rheumatologist who found nothing, referred me to a neurologist, who found nothing and suggested I see my Endocrinologist. I jumper off this down hill spiral to avoid the cost and continued frustration.

Glad I just found this thread. I just saw a local Endocrinologist, in practice a short time, who proposed I switch from Prolia to Reclast because I have been on Prolia for ten years. Three years ago Mayo told me I could stay on Prolia for 5 more years (total 12 years) before switching because Prolia was working, I have had no problems, and it has anti bone tumor properties - and I have lung cancer which can go to the bones. The local endocrinologist was proposing standard guidelines without considering the total patient profile. Not only do I have cancer but I also have pulmonary fibrosis and am on oxygen. It is critical I can continue exercising. So proposing a medication with such a high number of side effects is not the safest solution for me. Fortunately, I had enough information so I would not blindly follow that advice

search AI for “pre infusion protocols recommended by major centers to decrease acute phase reactions after Reclast infusion.”
If you have access to a clinical pharmacist ( through your endocrinologist, say , or hospital system) consult with them ahead of your infusion.