Connect
← Return to Myelofibrosis: Is there an age limit for bone marrow transplant (BMT)?
Discussion
Myelofibrosis: Is there an age limit for bone marrow transplant (BMT)?
Blood Cancers & Disorders | Last Active: Aug 8 6:48am | Replies (7)Comment receiving replies
@1pearl very nice to read your note. Yes, NGS testing completed in London Ontario. JAK2 V617F. Also MIPSSRisk Analysis 70+ is 4: Intermediate.
I had a very thorough visit with my Hematologist on Wednesday. In her assessment, I have responded very favourably to the HU: platelets down to 260 from the 800’s at the beginning of the year and all other lineages in a positive range. I will continue blood tests each month and revisit in early December. Her opinion about BMT being too dangerous for me remained the same. However, she suggested that I get a second opinion and in fact encouraged doing that.
I am definitely heading in that direction.
A question for all: is Besremi currently in use in the USA for the treatment of MF?
Replies to "@1pearl very nice to read your note. Yes, NGS testing completed in London Ontario. JAK2 V617F...."
Connect
@hughp I have been diagnosed with Pre Fibrotic Primary Myelofibrosis. It was very hard for me to get Besremi through my insurance due to the fact it's not made for this disease, but I finally did get it. My Oncologist has me on a 30 day hold from it right now. I started it in January. I'm having constant back pain and possibly a few other side effects. They don't know if it's the Besremi or not. We will see. Been off it for a week and a half. No relief yet. So yes, you can get it in the US due to great results from trials.