1. < Neuroendocrine Tumors (NETs)
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Anyone have side effects after Lanreotide injection?

Posted by genovaldi @genovaldi, Jul 3, 2024

I have been doing injection for a year now but as of a few months ago after the injection I am feeling very sluggish, and this would happen before the injection and now it's after. I did tell my doc and now I TAKE octreotide as needed. Anyone else have this?

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Turkey, Volunteer Mentor | @tomrennie | Aug 5 8:26pm
In reply to @micahnes "@tomrennie 1.2 cm, no metastasis. Thanks for your interest." + (show)
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@tomrennie 1.2 cm, no metastasis. Thanks for your interest.

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@micahnes I would want it out if I could regardless of symptoms. It’s small and hasn't spread. It isn't impacting veins or anything that would make the surgery exceptionally difficult is it?

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brucegs | @brucegs | Aug 7 9:32am
In reply to @hopeful33250 "Hello @brucegs, You do have several different medical issues that affect your eating. As @maeve115 suggested,..." + (show)
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Hello @brucegs,

You do have several different medical issues that affect your eating. As @maeve115 suggested, I would also recommend asking for a referral to a registered dietitian. Your oncologist or PCP should be able to provide a referral. I have had three surgeries for NETs, and I have met with a hospital dietitian several times; they are unsung heroes in medicine. They are quite capable of helping you develop an eating plan for different health issues.

Have you begun using Creon yet? If so, has it helped?

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@hopeful33250 Thanks!
I haven't yet accepted the prescription yet for Creon. Cost and risk/benefits are of concern. With my loval.oncologist who has previously and currently supervised my injections, we found that immodium controlled diarrhea, and I think.I may be willing to continur experiencing two or so " bad days" each time. I don't go to work; I may not have mentioned in my first introduction that I'm 92 years old.

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Teresa, Volunteer Mentor | @hopeful33250 | Aug 7 11:02am
In reply to @brucegs "@hopeful33250 Thanks! I haven't yet accepted the prescription yet for Creon. Cost and risk/benefits are of..." + (show)
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@hopeful33250 Thanks!
I haven't yet accepted the prescription yet for Creon. Cost and risk/benefits are of concern. With my loval.oncologist who has previously and currently supervised my injections, we found that immodium controlled diarrhea, and I think.I may be willing to continur experiencing two or so " bad days" each time. I don't go to work; I may not have mentioned in my first introduction that I'm 92 years old.

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@brucegs
How wonderful that you are making such good decisions about your health. Congratulations on doing all of this at age 92. I am guessing that you always approached life with logic and common sense.

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sophiarose | @sophiarose | 6 days ago
In reply to @brucegs "@hopeful33250 Thanks! I haven't yet accepted the prescription yet for Creon. Cost and risk/benefits are of..." + (show)
Profile picture for brucegs @brucegs

@hopeful33250 Thanks!
I haven't yet accepted the prescription yet for Creon. Cost and risk/benefits are of concern. With my loval.oncologist who has previously and currently supervised my injections, we found that immodium controlled diarrhea, and I think.I may be willing to continur experiencing two or so " bad days" each time. I don't go to work; I may not have mentioned in my first introduction that I'm 92 years old.

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@brucegs
I took Creon and it made me sicker
However
There are plenty of over the counter digestive enzymes on the market
Give them a try and see if one of them work for you
Take care
Good luck

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Teresa, Volunteer Mentor | @hopeful33250 | 5 days ago
In reply to @brucegs "Thank you" + (show)
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Thank you

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@brucegs While I don't have the same NETs diagnosis that you do (my three surgeries were in the duodenal bulb), I have found that Papaya enzymes have been helpful. They can be purchased in health food stores or online.

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rkklinger | @rkklinger | 4 days ago
In reply to @hopeful33250 "@brucegs While I don't have the same NETs diagnosis that you do (my three surgeries were..." + (show)
Profile picture for Teresa, Volunteer Mentor @hopeful33250

@brucegs While I don't have the same NETs diagnosis that you do (my three surgeries were in the duodenal bulb), I have found that Papaya enzymes have been helpful. They can be purchased in health food stores or online.

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@hopeful33250 My husband Ron also takes 3 enzymes as well as 2 Zypan when he eats. They are very helpful. We get the Zypan through a chiropractor.

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