← Return to Diagnosed with Parkinsons: dry mouth, sensitive tongue

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Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello @wkrebs59 and welcome back to Connect! I'm glad that you are able to join the discussion. You said that you are not using the Vyalev pump anymore but are going back to oral medications. What type of struggles are you having with the transition? Are your symptoms increasing?

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Replies to "Hello @wkrebs59 and welcome back to Connect! I'm glad that you are able to join the..."

@hopeful33250
Hello @hopeful33250 I really liked being on the Vyalev pump and had been regulated nicely! The problem I came across was not all the medicine was being absorbed in my tissue. I have already had one experience in the hospital where I was given high doses of strong antibiotics and had to lance the area and drain the medication out. I was started to feel the same way. The areas of pooling are located in my upper thighs this time and I grew concerned if I continued these areas would connect together and become infected. The transition back to oral has been a challenge and I have not quite got there yet. I had to wait three weeks for a follow up with my doctor which was the hardest 3 weeks I have had the tremors, my heart rate and blood pressure and the overall lack of sleep I became sleep deprived for about 9 days . My neurologist called in medication but it takes time to get the right dose to compare with Vyalev. I might just not have the body type to handle the liquid form since I do exercise and have more muscle tissue compared to fatty tissue. I have to allow these pooling areas of meds to try to be absorbed. I came so close to having sepsis that I don't want to go that route again. The pain in the areas of the cannula and the balling up or what is called pooling of the medication are two of the symptoms. Some of the areas seem to be moving to the surface yet have not been able to dissolve the medication which is now causing pain in the many areas I have used. I try to use a heating pad and massage to break it up but at this time I continue to have them. The good news is I have no fever or redness so there is no infection and have to wait on them to be absorbed on their own. This could take a while. Are there others that have gone through this and if so what was your experience in both getting regulated and ridding of the pooling ?