@caretakermom Hi there! I had my live donor transplant at Mayo Rochester on 12/13/2022. I think that because I'd not been on dialysis, recovery from the surgery went very well. I started investigating the immunosuppressants that I'd been prescribed - mycophenolate mofetil and tacrolimus - and discovered that tacro has nephrotoxic effects. So I started researching alternatives and found Belatacept. Mayo Rochester had actually been doing studies on using it as a protocol so at my Month 4 appointment I basically presented my research to the doctor. His first response was that my new kidney would be good for 20 years. Since I had the transplant at 55, I asked him if I should plan on dialysis and a second transplant at age 75 (which - since I'm Type O - would probably preclude me from ever coming up on the deceased donor list... but that's a different discussion 😉 ). His response was a slight pause and then he said that he would bring it up to the transplant committee. They approved it and I started Belatacept in July 2023. So I was very fortunate that I was in Rochester and that transplant team had already been studying Belatacept's use. I'm curious as to what your coordinator said was so bad about the drug. Good luck! Let me know if you have any questions.