Statin discontinued due to neuropathy. What are some alternatives?

Posted by Nazir Khan @nukhan, Jan 19, 2020

I have been using Lipitor since 2007 for lowering my cholesterol which is on the list of those medicines that are suspected to cause neuropathy. I am thinking of discontinuing this menace but before doing so want to check with those members who have discontinued using statin and what is their experience. What alternative methods have they since adopted for lowering their cholesterol .. diet, alternative medication, exercise or anything else ?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Profile picture for rdavis1018 @rdavis1018

@johnbishop I have only recently I’m aware that there is a serious issue of 50% of people that start taking statins develop neuropathy within a year of starting them. I was never advised at this before it was prescribed for me which I am very upset about. I haven’t had a chance to get in to my doctor yet, but I have started having symptoms of neuropathy, which I know are being caused by this statin. The symptoms started shortly after I started taking it, when I had no neuropathy symptoms whatsoever before I started the medication.

Jump to this post

Hello @rdavis1018, Welcome to Connect. I think it's best to discuss it with your doctor before stopping taking the statin. I did have a long discussion with my doctor several times about the neuropathy side effects of statins and told her I would rather work on my cholesterol numbers through lifestyle changes since I already had neuropathy and didn't want to make it any worse. I'm not sure which statin you are on but you might find this related discussion helpful:
-- Statins that won't cause/worsen neuropathy: https://connect.mayoclinic.org/discussion/statins-that-wont-causeworsen-neuropathy/

REPLY
Profile picture for John, Volunteer Mentor @johnbishop

Hello @rdavis1018, Welcome to Connect. I think it's best to discuss it with your doctor before stopping taking the statin. I did have a long discussion with my doctor several times about the neuropathy side effects of statins and told her I would rather work on my cholesterol numbers through lifestyle changes since I already had neuropathy and didn't want to make it any worse. I'm not sure which statin you are on but you might find this related discussion helpful:
-- Statins that won't cause/worsen neuropathy: https://connect.mayoclinic.org/discussion/statins-that-wont-causeworsen-neuropathy/

Jump to this post

@johnbishop yes I’m aware that there are serious issues with suddenly stopping statins so I’m not going to do that. I plan on contacting them on Monday to make an appointment to see if she could possibly switch me to something. That’s not a statin or if we should just gradually take me off of it and I can try dietary and changes an exercise as an alternative

REPLY
Profile picture for rdavis1018 @rdavis1018

@johnbishop I have only recently I’m aware that there is a serious issue of 50% of people that start taking statins develop neuropathy within a year of starting them. I was never advised at this before it was prescribed for me which I am very upset about. I haven’t had a chance to get in to my doctor yet, but I have started having symptoms of neuropathy, which I know are being caused by this statin. The symptoms started shortly after I started taking it, when I had no neuropathy symptoms whatsoever before I started the medication.

Jump to this post

@rdavis1018
Hello,
Just letting everyone know there are non-statins now available by prescription only. You need to ask your primary physician about that. However, just keep in mind like with all medications, it may or may not work for you.
Take care and have a serene weekend,
gus

REPLY
Profile picture for rdavis1018 @rdavis1018

@johnbishop I have only recently I’m aware that there is a serious issue of 50% of people that start taking statins develop neuropathy within a year of starting them. I was never advised at this before it was prescribed for me which I am very upset about. I haven’t had a chance to get in to my doctor yet, but I have started having symptoms of neuropathy, which I know are being caused by this statin. The symptoms started shortly after I started taking it, when I had no neuropathy symptoms whatsoever before I started the medication.

Jump to this post

@rdavis1018
It might be worth googling “CholestOff reviews”, an over the counter supplement by Nature Made. My husband used it after experiencing dementia-like symptoms from statins and CIDP from Repatha. He no longer needs anything and his numbers are acceptable.

REPLY

Can anyone recommend a source or research connecting taking statins with development of neuropathy? I am surprised and disappointed not
to be advised by a physician treating me for PN with
PT that I should also address statins which I have been prescribed for many years.
Thanks in advance to anyone who can offer a direction to look into.

REPLY

Cardiogize from youngliving . My bf had a triple bypass and they wanted to put him on those and we did research on statins and Cardiogize was the best choice for him. It works wonders

REPLY
Profile picture for lorirenee1 @lorirenee1

I have read that if you eat RED apples, carrots, and beets ALL of the time, your cholesterol will go down naturally, by many points. I do this, but have not been to the doc yet to get cholesterol levels. I do have high cholesterol, but not too high, and the ratio of the good to bad is good. Lori Renee

Jump to this post

@lorirenee1 cardiogize from youngliving....it runs out a lot...but look at the ingredients and find something like it if its not in. It really works

REPLY
Profile picture for davidpn @davidpn

My neurologist said she’s treated hundreds (maybe more) and statins have never been a problem. True?

Jump to this post

@davidpn statins only make ppl more sick. They don't want us better, they want us more sick. All about money...

REPLY

It is important to remember that all of us tolerate medications differently which makes it important to share how we are feeling on a medication with our providers. As with any medication, there are benefits and risk factors that have to be taken into consideration for each and every patient. From Mayo Clinic:

"When thinking about whether you should take statins for high cholesterol, ask yourself these questions:

Do I have other risk factors for heart and blood vessel disease?
Am I willing and able to make lifestyle changes to improve my health?
Am I concerned about taking a pill every day, perhaps for the rest of my life?
Am I concerned about statins' side effects or interactions with other medicines?

It's important to consider your medical reasons, personal values, lifestyle choices and any concerns when choosing a treatment. Talk to your healthcare professional about your total risk of heart and blood vessel disease and personal preferences before making a decision about statin therapy."

- https://www.mayoclinic.org/diseases-conditions/high-blood-cholesterol/in-depth/statins/art-20045772

For most patients, the limited risk factors and side effects don't outweigh the risk factors of the heart and/or cholesterol issues. If you have concerns about statins, it is best to discuss them with your medical provider to weigh your options.

REPLY
Profile picture for moonlight333 @moonlight333

@davidpn statins only make ppl more sick. They don't want us better, they want us more sick. All about money...

Jump to this post

Nonsense.

REPLY
Please sign in or register to post a reply.