Anyone else experiencing scarring down and compressed airway?

Posted by felix536 @felix536, Apr 20, 2024

I had a lower left lobectomy two years ago and am now experiencing scarring and airway collapse with groundglass opacities in upper left lobe. Surgeon says nothing he can do. See pulmonologist next week. Anyone else with these issues? Best to All!

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felix536 | @felix536 | May 9, 2024

In reply to @jannam "Hi Felix, I had VATS procedure in 2020 to both lungs because of tumors. I have..." + (show)

Very sorry to hear that. Did you have a lobectomy and is the scarring and plugging in a different lobe? My airway seems to be compressed by something (possibly scar tissue) and there's mucous plugging and ground glass opacities, is your situation the same?
Are they treating your breathing issues?

felix536 | @felix536 | Jul 21 12:01am

Has anyone else experienced airway collapse of upper lung lobe after lower lobectomy? Not sure why but there is ground glass appearance on scan, mucous in airway and airway is closing/collapsing during this past four years after lobectomy. Pulmonologist can not explain what is causing it.

frouke | @frouke | Jul 21 7:11pm

In reply to @felix536 "Has anyone else experienced airway collapse of upper lung lobe after lower lobectomy? Not sure why..." + (show)

I’m sorry you’re going through such a difficult time, it sounds really bad, I think perhaps you need to seek more help from another lung specialist and have more tests done. It’s possible that you may have an infection in the lobe because of all the ground glass seen on the scan and mucous in your airway, I definitely don’t feel comfortable with your doctor, did the doctor say that more tests should be done to find out what is causing this problem?

mamajite | @mamajite | Jul 22 12:30pm

In reply to @felix536 "Has anyone else experienced airway collapse of upper lung lobe after lower lobectomy? Not sure why..." + (show)

hi @felix536 - I had a collapsed lung after my bronchoscopy and it truly sucked. I'm so sorry you're dealing with that. have you been given any treatment to help it heal? I had to have a chest tube and hospital stay for a few days. I agree with @frouke that it would be worth consulting another doctor - either a pulmonolgist or oncologist, to see what is causing the issue in your left lung and put together a treatment plan to address it.

do you live in an area that has been impacted by wildfire smoke? (I'm going to make a separate post about that, but it's super unhealthy - especially for people with lung disease like us.)

tedvoelker | @tedvoelker | Jul 23 8:03am

In reply to @felix536 "Has anyone else experienced airway collapse of upper lung lobe after lower lobectomy? Not sure why..." + (show)

I understand what you have experienced. I have a trapped lung, when my tumour was radiated two years ago caused scar tissue on my airway so I can only access my left lung. It took and continues to take getting use of it. Talking about wildfires, I stay indoors as much as possible but if I went out I used my portable oxygen and a N95 masks. Everyone just the faith and live large.

Colleen Young, Connect Director | @colleenyoung | 1 day ago

In reply to @felix536 "Has anyone else experienced airway collapse of upper lung lobe after lower lobectomy? Not sure why..." + (show)

@felix536, I'm sorry to read that you continue to have issues with your upper lung lobe. Have you considered getting a second opinion?

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