← Return to Reactions when you tell people you have Parkinson's Disease?

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Profile picture for gregmt @gregmt

I was diagnosed with PD in June and I’m 67. I initially shared my diagnosis openly since my tremors were easily noticeable. What I quickly grew inpatient with was all of the unsolicited advice on how to treat my symptoms I received. Everyone had an opinion on what I needed to do. I constantly remind myself they are only trying to be helpful and truly care about my wellbeing. If I took any of the advice seriously I would currently be juicing, drinking protein shakes, on the carnivore's diet, avoiding gluten, taking 30 different supplements, gone vegan, daily Epson salt baths, doing acupuncture, etc, etc….. If any of these well meaning individuals also had PD I might have listened. I’m currently working with my doctor on a PT and medication routine but still in a trial and error stage on what works best for me. I have good days and bad days. The bad days consist of stiffness/muscle pain/joint pain mostly in my arms/shoulders/chest and neck, sometimes in my lower back and hips. I am trying to best prepare myself for this journey with as much information as possible and find this forum extremely helpful, the unsolicited advise not so much.

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Replies to "I was diagnosed with PD in June and I’m 67. I initially shared my diagnosis openly..."

@gregmt
I too was diagnosed around your age. Stay connected with your doctor and tell him/her everything. I joined this support group because I had so much fear of the future. I’m doing great at 75 years because I was physically active, I have a doctor who listens and my we have found meds that work. Your journey is day by day and will improve. Ignore those people because they are not walking in your shoes and if you need to, tell them that.