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My experience in High Risk MGUS & Non High Risk SMM trial

Blood Cancers & Disorders | Last Active: 2 days ago | Replies (9)
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I never heard of high risk MGUS either. My numbers certainly exceed or equal yours (also IgG lambda (1.6) (3375) - but my oncologist thinks I am reasonably stable - have been for 24 years. (I have worried about this for 24 years.)
We are all hoping for this trial to be successful. What can you tell us about this new drug????

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Replies to "I never heard of high risk MGUS either. My numbers certainly exceed or equal yours (also..."
righty01 | @righty01 | 4 days ago

@hsminc
Linvoseltamab is a FDA approved immunotherapy drug used to treat relapsed or refractory multiple myeloma. Approved for adults who have already received at least four prior therapy lines. Clinical trial is to see if it can delay progression.

I believe I am intermediate SMM because my kappa lambda free light chain ratio is greater than 20. My plasma cell percentage is 10-15 % and my FISH panel showed gain of 1Q and monosomy 13 which apparently puts me on a faster track to progression.

I am cautiously optomistic.

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