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Momelotinib

Blood Cancers & Disorders | Last Active: 1 day ago | Replies (4)

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@davi0937
I’ve been on Ojjarra for almost two years now. Originally I was on 200mg once a day but have been on just 100mg for over a year ago. I forget which lab test had changed to cause the decrease in dose.
Bottom line is great news for me. My hemoglobin, white and red count, and platelets have been in the normal range for quite a while now. I do have 1.5% immature neutrophils which is a concern to me. I believe my spleen has decreased in size for I don’t feel any discomfort anymore.
If I were not going monthly for blood draws, I would not know I have myelofibrosis. I use it as my excuse to go home early from dancing! I’m 78 yr young.
So keep the faith. Not all of the bad things some people are going through will happen to you.

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Replies to "@davi0937 I’ve been on Ojjarra for almost two years now. Originally I was on 200mg once..."

@cindyem wow! What a great reply!! I will ask my MD if I can start at a lower dose. You are amazing!!