← Return to My experience in High Risk MGUS & Non High Risk SMM trial

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Profile picture for kjoed53 @kjoed53

I didn't realize there was a high risk MGUS, but I wasn't diagnosed until I had SMM. Unfortunately for me I was on 25mg prednisone for PMR when I had my bone marrow biopsy, so my actual risk is still undetermined. I'm at 5mg now and scheduled for new blood work tomorrow. Keep posting. I'm definitely interested in knowing the results.

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Replies to "I didn't realize there was a high risk MGUS, but I wasn't diagnosed until I had..."

@kjoed53

It is interesting you mention PMR. I was experiencing bilateral knee, hip and shoulder pain in the fall of 2023. Had a battery of bloodwork over the next 6 months to try to figure it out. That is hoe I was initially diagnosed with MGUS.

I was finally diagnosed with PMR in the Spring of 2024.