Hi. Congratulations on beginning your treatment. For me the treatment hit my immune system harder than I expected. It helped a lot when I was given IVIG infusions which will continue until my immune system begins to function.
Fatigue was and continues to be significant.
I am finally designated CR. My bone marrow biopsy last week results are not yet complete. Although it is clear I am not yet MRD Negative.
I am describing this stage as a kind of recovery. It’s different and unfamiliar territory for me. I am shocked at how short this has been and how long it feels.
I would say I am not even sure how to talk about it or make sense of this yet.
I do think and I might even feel like I am getting better.
I hope that is helpful. I am sure every person who receives this treatment will have a different experience.
I also know that the whole team at Dana Farber is amazing. I am fortunate to be there.