AIs after hysterectomy?

Posted by maximummy @maximummy, 4 days ago

Hello to the Group and thank you for all the amazing information I am finding.
I am actually awaiting my diagnosis but wanted to ask if AIs are still necessary, or perhaps a reduced dosage if you have no ovaries? I have read about how progesterone helps to produce oestrogen.
I am BRCA2 positive, 70 years old.
Thank you and only the best of good luck to everybody.

I

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Profile picture for kissmekate48 @kissmekate48

@myoga, seconding this. I had my ovaries/tubes removed after an ATM diagnosis (cervix, uterus was left because if something goes wrong there, it's easier to notice). I asked a few times about any hormonal effect I might notice and my gyn-oncologist reassured me that my post-menopausal little almonds were not doing anything of use. 🙂 And it's true, I've noticed nothing. She also said that if she could, she'd encourage all post-menopausal women to do the same to avoid ovarian cancer. I count one less thing to worry about as a definite up-side to having genetic testing!

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I have my bilateral salpingo oophorectomy (ovaries and tubes removed) two years ago and didn’t feel much different either. I hope you’re doing fine.
I met a mother and daughter. Mother had breast cancer and tested positive for brca after. She’s doing find and in remission for quite a few years. The daughter tested negative but she had ovarian cancer later and she’s not doing so well due to late stage. So you’re right, it’s a definite up-side to genetic testing and almost a blessing when you can take measure to prevent cancer. Wish you all the best.

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Profile picture for vegada @vegada

@dmr4ever I have not taken anything yet for Osteopenia. Managing bone issues and actually finding a solution feels almost impossible to me based on the research I have done. Today, I am focused on building muscle, ensuring I take sufficient calcium, vitamin D, collagen and protein. I don’t think it will be enough to reverse my osteopenia and I think the real answer may be to take HRT which oncologists will tell us we can’t because of our prior cancer. It's a quagmire and I am not sure what medicine, if any, that I will take in the future.

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@vegada

I did HRT and actually suspect that it contributed to my cancer. My doctor at the time did a breast cancer risk assessment and determined my risk was low.

I take Vitamin K2, Vitamin D and calcium supplements but I haven’t done weight training for a few years. I have asthma and have used oral steroids off and on for decades. There are so many contributing factors, pros and cons that it’s hard to know what’s best.

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Profile picture for dmr4ever @dmr4ever

@vegada

I did HRT and actually suspect that it contributed to my cancer. My doctor at the time did a breast cancer risk assessment and determined my risk was low.

I take Vitamin K2, Vitamin D and calcium supplements but I haven’t done weight training for a few years. I have asthma and have used oral steroids off and on for decades. There are so many contributing factors, pros and cons that it’s hard to know what’s best.

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@dmr4ever it is very hard to know what to do. I am totally right there with you. I do weight lifting with a physical therapist who is trained in osteopenia/osteoporosis so that may be something for you to consider. I took HRT years ago before I was diagnosed with breast cancer. So it could have easily contributed to mine too, but I will never know nor do the doctors actually know what exactly causes breast cancers. They have some guesses and theories based on what they see clinically, but if we all knew exactly what would prevent breast cancer, boy would that ever be a tremendous medical win.

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