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I have JAK2 ET and MPN: Anyone else have these symptoms?

Blood Cancers & Disorders | Last Active: 1 day ago | Replies (116)
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@lag630
Hi I had Lyme disease about 20 years ago and was then diagnosed with primary myelofibrosis about 12 years ago. Now I have leg weakness and irregular heartbeat. I believe this is all connected but can’t get any answers from doctors. I used to be very fit running ultra marathons now I struggle to walk

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Replies to "@lag630 Hi I had Lyme disease about 20 years ago and was then diagnosed with primary..."
Lori, Volunteer Mentor | @loribmt | 2 days ago

Welcome to Mayo Connect, @jammy17. While there is no definitive proof yet, there are studies underway that have led to a possible correlation of Lyme's disease and some blood cancers, especially CLL (Chronic lymphocytic lymphoma). While Lyme disease itself does not directly cause cancer, chronic inflammation associated with it may elevate cancer risk. So perhaps down the road there will be more discoveries on how this tiny bug can wreak so much havoc to our body in causing other blood cancers such as myelofibrosis. (MF)

Twenty years ago there wasn't much information on Lyme disease. Were you able to be treated right away with Doxycycline or did it take a while for your doctors to diagnose the Lyme's disease?
Are you in a treatment program for your MF?

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