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Transplant patients - anyone get anemia or Parvo Virus?
Transplants | Last Active: 6 hours ago | Replies (68)Comment receiving replies
I want to bring this discussion back to the question persented in the title: Transplant patients - anyone get anemia or Parvo Virus?
@caregivermom you asked if anyone ever had an episode "where you're anemic and your CBC panel is low?" As I recall, your husband is currently experiencing such an episode - and that the Parvo Virus has been tested and ruled out as the cause of his anemia. In a couple of weeks he will be having a bone marrow biopsy in a couple of weeks to investigate a possible clue about the anemia and fatigue.
I sincerely hope that the results will provide some information that will lead your doctors to a cause for the anemia. Hopefully after that test, your doctors will know more about whether his medications are the culprit. And that is when your transplant doctors will be able to make adjustments, if needed.
Remember that the immunosuppresant meds must be at a level that prevents rejection! Also remember that everybody's transplant medications have been individually prescribed, because each of us has different genes, responds differently, and has different medical history.
@caregivermom, Will you have to travel to UCLA for the biopsy? Will there be any preparation beforehand? How will you and husband spend the next 2 weeks?
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@rosemarya
The bone marrow biospsy will be done at a UCLA lab facility. Yes he will have to prep for it. He has had one done before prior to transplant so it's not a big deal. Our local neph, hematologist and myself believe the culprit is the Everolimus but hematologist ordered bone marrow biopsy at the request of Mayo Az transplant team via our home neph.
I got the hematologist office to write him a note for work indicating it's medically necessary for him to travel NOT to work at this time - he will be working remotely from home.
Yes I'm very concerned about the rejection medication. I was told by our home neph(who spoke to Mayo Az) to temporarily take him off Everolimus, replaced with prednisone but continue with Tac as before until he recovers from anemia. After anemia is gone, the nephrologist(s) will decide whether to restart/change txplant meds. My preference would be to stay with current med but with an adjusted trough range but that's up Mayo Az.
It's a little frustrating now because everything has to be done thru home neph who has to reach out to Mayo Az for advice re txplant medication. Wish we could deal with the Mayo Transplant team directly.