Hi @caretakermom
Is this the plan?...
Currently hubby is completely off Everolimus, the offending drug suspected to be causing the severe anemia.
To replace the Everolimus, hubby is temporarily taking 5mg Prednisone until September 1st appointment.
The local neph feels that the anemia should begin to resolve over the next few weeks. (That will be the greatest confirmation that the drug is the problem).
Also, to double confirm that the problem is the Everolimus, the UCLA hematologist is preforming a bone marrow biopsy.
Then, on September 1, you have an appointment to meet with your local neph.
He will have all of this new data (the bone marrow biopsy result and a confirmation that hubby's anemia is resolving with the removal of Everolimus).
At that meeting, your local neph will give you his thoughts regarding the best plan moving forward to replace the predisone and then he will reach out directly to Mayo Arizona to consult.
It sounds like an excellent plan to me. Do I understand the plan correctly?