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Transplant patients - anyone get anemia or Parvo Virus?
Transplants | Last Active: 3 hours ago | Replies (61)Comment receiving replies
@caretakermom
I just saw your request for my dosages.
I take 2.75mg Envarsus XR (my TAC target is 6 to 8 blood level) and I take 250mg Cellcept bid.
Remember, this is my personal immune suppression plan designed by a Mayo doctor for ME after multiple illnesses.
This plan has kept rejection away (I am happy to report excellent quarterly CareDx Allosure blood tests), no CMV, no BK, no elevate liver enzymes, no leukopenia, etc.
Yes, it's below the "standard dosages" for Cellcept but these work FOR ME.
I am a 5'4" lady weighing 120.
I am not saying it's the right dosage for hubby. But I do believe there is a plan for hubby that will get him into his own personal immune suppression sweet spot.
Don't accept a generic answer, these are high-risk drugs.
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@hello1234
When you were going thru making changing to your txplant regimen, did you work with your local neph or were you able to meet with your transplant team to make the adjustments?
I sure wish the Mayo Az team finds a customized plan for hubby. And I wish we could work with them directly on that. Instead, I'm told by the Mayo txplant nurse coordinator to work with our home neph who is really the liaison to Mayo.
Next appointment with home neph is on 09/01 -- i think he's expecting to see hemoglobin improves and bone marrow biopsy result. At this appmt hopefully we can get clarifications of hubby's customized txplant regimen. I will definitely advocate for him to get off prednisone if that is NOT medically necessary insofar as it addresses rejection prevention. If we still need clarifications I will ask home neph to help us get an expedited video appmt with Mayo transplant nephrologist so that we can work directly with the Mayo team (Have already been told they will prioritize current txplant patients over us).