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Anyone use Nidra bands for restless legs (RLS)?
Sleep Health | Last Active: 7 hours ago | Replies (28)Comment receiving replies
@missjb thank you for the info. So far, iron supplements don’t raise my ferritin level which is the only blood iron marker that is low. I had an iron infusion about 9 months ago and that both raised my ferritin and relieved the symptoms. The symptoms returned as the ferritin level dropped. I’m scheduled for another iron fusion in a few weeks. You’ve given me some good direction to investigate further.
Replies to "@missjb thank you for the info. So far, iron supplements don’t raise my ferritin level which..."
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@steven46 It sounds like you have a classic case of RLS. From my position of needing nightly medication and the occasional use of the Nidra bands, your treatment seems straight-forward in comparison. (I am jealous)
Unfortunately, the majority of RLS sufferers seek treatment from their primary doctor, someone not versed in IV iron. It sounds like you are receiving the best care from a knowledgeable practitioner!
Weirdly, when I had the one IV iron dose, my ferritin shot up to 800 and something. Every year since then, it's come down about 100--so still (4 years later) mine is elevated (in the 400s). No symptoms from this (and it doesn't worry my doctor), but it's odd.
Despite my lack of response to IV iron, my RLS doctor checks all my iron blood work yearly. Your experience is a reminder that everyone with RLS should have this done. Since low brain iron is the root-cause of most (if not all) RLS, there should be more discussion of this in our Mayo forum. It is so good you have shared your experience.
What you seem to have is efficacy--responding with no RLS for months at a time. That is great!