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Transplant patients - anyone get anemia or Parvo Virus?
Transplants | Last Active: 3 hours ago | Replies (61)Comment receiving replies
What is current customized dose of Myfortic and Tacrolymis? I had tried to set up appmt with Mayo neph but nurse coordinator says to go thru home neph. I will speak with our local about customizing a dose(trough level) for hubby.
Mayo wants a bone marrow biopsy done to show no other issue(s) is contributing to anemia. It is scheduled for 2nd week of Aug.
Replies to "@hello1234 What is current customized dose of Myfortic and Tacrolymis? I had tried to set up..."
Hi @caretakermom
What I mean by a customized immune suppression plan is when the doctor adjusts the medications and dosages according to the patient.
Here is my understanding of hubby's medical history:
At certain dosages, hubby does well. No rejection and no illness.
Then they increase the dosage according to policy, and hubby becomes sick.
With Myfortic and TAC, hubby did well at the lower dosage. No rejection and no illness. When the Myfortic dosage was increased, he got sick with recurring CMV virus.
Then instead of lowering the Myfortic, the Myfortic is changed to Everolimus. And here we go again....
With Everolimus and TAC, he did fine at the lower dosage. No rejection and no illness. When the dosage was increased, he was hospitalized for anemia and needed a transfusion (and someone requested a bone marrow biopsy).
The UCLA hemotologist is saying no bone marrow biopsy is needed. It's the immune suppression, running too high.
Right?
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@hello1234
Typo. What is YOUR customized dose of Myfortic and Tac?