Hi krag1949,

Thanks for sharing your experience. I wish you all the best.
I have found ET pretty easy to live with for 9 years now and I hope you will feel the same way.
How high were your platelets when you were diagnosed?
Mine had hung around in the middle 400k for nearly 2 years and then jumped to 700k...that's when I had to see a hemotologist.
I have the JAK2 gene mutation.
Never had an issue till now when the Dr. upped it by 2 pills and now dropped one pill.
I know the platelets want to push back and climb again but it usually takes over a year before it hits the 400k mark.
I am hoping my other blood lines will adjust and move back to the low normal range...but I also know the platelets will slowly climb too.
That's the dance we do.