← Return to Restless Legs - Any suggestions as seen many doctors and medications
DiscussionRestless Legs - Any suggestions as seen many doctors and medications
Sleep Health | Last Active: Aug 6 2:53pm | Replies (154)Comment receiving replies
Replies to "I finally, after 18 mos, got my insurance to include the Nidra TOMAC device. $1000 copay..."
Connect

@beetle1 Congratulations on joining our community of Nidra users : )
I'm curious--what kind of insurance do you have? I think everyone wants to know details of insurance experiences, if you don't mind sharing.
I have Medicare and United Health Care supplemental and had no out-of-pocket expense, personally, for my Nidra, which I got in April 2025.
My expert RLS doctor told me that the Nidra doesn't work for everyone. Some of his patients have tried with no success. So, there is a possibility it won't work for you.
Hopefully, however, you will have the experience I have had. It has worked wonderfully for me--made an unbelievable difference in the quality of my life.
You may not know the total worth of its effectiveness, however, until you until you have used it for a while.
Like you, when I started I was on medication that was helpful, although not "enough" by itself. I don't believe, for me, that Nidra can overcome RLS without effective medication as part of the picture.
I found there are 2 ways it helps me. First, of course, it stops an episode, when these occur. I turn it on and go back to sleep (immediately). Secondly, over time, (through a phenomenon called neuromodulation) it also reduced both the frequency and severity of my episodes.
Like you, I circuit in and out of symptom severity. Sometimes (like if I overexercise) RLS is quite severe and nothing helps very much (not Nidra, not medication, not the combination of the two.)
On the other hand, because of Nidra, I've had streaks of time (up to 6-8 + weeks) when I've had no RLS at night, at all—some in the evening, laying on the sofa, watching TV, but none at night--so I’ve had much, much, much better sleep because of my Nidra.
After a really good stretch (abt 6 weeks without RLS), I tried to reduce my medication and I started having symptoms again--so I gave up the goal of less medication in favor of more sleep--more "RLS-free" sleep.
About 6 months ago, I was sleeping an average of 6-6.5 hours per night. Now it's about 7-7.5. That has also made a huge difference how I feel in the daytime.
At the beginning of using Nidra, maybe it took a month before my brain got into the swing of using it (having a quick response etc). RLS is all about our brains, remember. For me, it wasn't instantaneously a miracle. It took time to get used to it, subconsciously. Then, it was months before I started to have night after night with no symptoms, at all. Nidra retrains our brains and for me this was not instantaneous. I was nonplused the first time I turned mine on. I didn't have a WOW "this is great!" beginning. It took time for the benefits to get better and better.
I just used it consistently without very much thought (trying to avoid worrying and self-questioning--just keeping an open mind). I recommend anyone starting out take the same approach. Bringing any anxiety into the mix when it's about sleep is always counterproductive.
Would it have been worth $1000 to me, had I paid out-of-pocket? It would have been worth $10,000! I've had horrible RLS and suffered substantially since 2010. I realized death was better than how I was living--and, I cried and cried and cried.
Now, if the house caught on fire, I would gab my Nidra on my way out! It has significantly improved my quality of life. I love my Nidra! More effective than I ever dared to hope.
The pads we use are $75 per month (for 4 pads). I've had periods they lasted longer than a week--in case you will need to pay for these out-of-pocket--be careful with them and they can last longer. Always cover with the plastic shields (printed side down) as soon as you take them off. Press the pad-part down firmly when you put them on. Also, be careful with the velcro--avoid getting lint/crud etc on it.
Please do post your experience for others to learn from. Nidra (according to Noctrix Company) works for the majority of users--so very likely you will be touting your success after a while and we readers will want to hear about this. I'm crossing my fingers you will have the same success I have had!