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Anyone else find the side effects of Hydrea 500MG frightening?
Blood Cancers & Disorders | Last Active: 1 day ago | Replies (221)Comment receiving replies
two month ago started on 500mg 3 days a week, the first dose i have vascular effects, and nearly went out of the floor, called dr office seemed to dismiss, and said continue with it.... than they raised me to 1 per day more problems, and my platelets of 1 million went up not down, so they upped again 2 more pills total of 4500mg per week.. Now i'm high risk, as i have multi other medical issues that were under control that hydrox . I have a tummy wrap for a hernia repair, i can't throw up, so i get all this foam and dull pain in the wrap area.. i had grout symptoms so bad i couldn't walk for a week again my complaints went unheard,, I am getting a second opinion on Tue from Fred Hutch in Seattle, as the Big Private Cancer clinic in puyallup, has failed me, they don't follow threw, i haven't had a blood test since they upped my meds, have had to call EMT's twice due to foaming and dull pain in chest, as you are at high risk for heart attack and its hard to tell the differance when it stops you in your tracks and doesn't ease up, goes up your neck to ears the dull pain.. i'm almost to the point of just using my am and pm asprin and putting this in Gods hands, as to me the quality is better than sitting inside. But i don't want to have a stroke and be a burden to my family, as i only have a couple of sisters.. So we need more research and better meds for this disease.. it been a low priority not many new break throughs in 30 years, there are a few trials going on.. but i can't do them...
Replies to "two month ago started on 500mg 3 days a week, the first dose i have vascular..."
@ladyplumber7 Hello. Sorry you’re feeling so miserable and concerned. I have taken 1000mg of HU daily for over 5 years. There are side effects, mostly fatigue, that I attribute mostly to the HU but, at almost 79, some of those side effects I know are just from getting old.
There day I had the bloodwork done that let to PV diagnosis, I had some terrible pain in my knee and that was gout that was also found that same day.
I take allopurinol for the gout and, for the most part, have had very little to complain about.
I agree that you need a really good GP who can tie all your health issues together and help you decide the best meds and course of action for you.
I work on the theory that “God helps those that help themselves” so don’t give up. You just need to find a provider that listens to you, treats the whole person and makes up a program that actually helps.
Also, I know that diet and exercise can be critical to your overall wellbeing when you’re on HU.
Please, if you can, let us know how it goes with that second opinion,
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@ladyplumber7 Oh, boy, this sounds awful. As someone with comorbidities, I know that juggling a lot of health issues gets to be a lot to deal with. Just keeping track of the ailments and appointments, tests, and follow-ups is exhausting and wears you down sometimes.
Do you have a good GP or primary you can talk to about this? Sometimes specialists are so busy working on their little bit that nobody is looking at you as a whole person and whether all these fixits are working together.
I have seen GPs get real about offering helpful guidance and care when you tell them, "I am just about ready to give up on all this."
My fingers are crossed that you can get some answers on Tuesday. Please report back!