Hi @susanmarie52 It’s really encouraging that you are in active surveillance. Though there are different ‘types’ of CMML, some are less aggressive than others and slow to progress. So being able to just ‘keep an eye on things’ is reassuring. In situations like this, there’s nothing to be gained by treating early. Statistics show it doesn’t change the outcome. But delaying treatment until necessary prevents you from experiencing side effects of treatment until needed and also keeps the options open if/when you do need it.☺️ While there may be no cure besides the stem cell transplant, there are treatments which can make a considerable difference in the disease when needed.
Because this is a rather rare disease it’s also excellent that you’re with Mayo. Their specialists are 2nd to none…yep, I’m a bit biased with my own experience at Mayo-Rochester.

Mayo is also one of the leading bone marrow transplant specialists in the country as well, so down the road, if that is an option in front of you it may be worth exploring. I had a bone marrow transplant 7 years ago for an aggressive leukemia at the age of 65. I’m now 72, living my best 2nd life. ☺️ Is a stem cell transplant something you’d consider?