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Transplant patients - anyone get anemia or Parvo Virus?
Transplants | Last Active: 57 minutes ago | Replies (67)Comment receiving replies
The Myfortic dose prior to Everolimus, says take 180mg, e tablets, BID. So 540mg 2x/daily. I remember having to adjust down to 2 - 1 tablet while battling CMV. Then raised back up to 3 and CMV would recur. Never BK virus though. Adjusted for about 6 months finally Mayo switch to Everolimus in Dec 2022 I think.
Replies to "@hello1234 The Myfortic dose prior to Everolimus, says take 180mg, e tablets, BID. So 540mg 2x/daily...."
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@caretakermom
It sounds like your hubby becomes easily over immune suppressed. Whenever they try to adjust up, there is a problem.
It's very possible that the correct dosage of Myfortic for hubby was the reduced dosage they were using during CMV, along with his TAC.
At that lower dosage, did the CMV return or any signs of rejection?
Or during the reduced dosage of Everolimus was there any anemia or signs of rejection?
Immune Suppression is a fine art. The transplant folks like to run a high to avoid any chance of rejection. Then, when a virus or trouble like anemia, leukopenia, neutropenia hits, they know it's too high (over suppressed).
Maybe discuss the possibility of returning to the meds and lower dosages when hubby was not rejecting, not getting sick with CMV and not getting transfusions for anemia.
How does your local nephrologist feel about all of this?
Does he like the idea of retuning to a lower dosage of Myfortic with TAC?
Or the lower dosage of Everolimus with TAC? Ultimately, if he had the final say, where would he like to land regarding the meds and dosages? It's important to know his thoughts so he can advocate for hubby.