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DiscussionTransplant patients - anyone get anemia or Parvo Virus?
Transplants | Last Active: 8 hours ago | Replies (68)Comment receiving replies
Replies to "@danab Do you also take prednisone? Hubby's home neph has taken him off of Everolimus, added..."
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@caretakermom Yes I was on it the first 6 weeks after transplant and it was reduced every couple of weeks untill I was taken off of it completely . haven't needed it since. But that was what they called the standard dosing along with 5 other medications. most of them were reduce over time and unless I had a problem were taken off them by 6 months. now I had a problem with Parvio which I ended up getting IV type treatment. I also had a problem with CMV and that one they put me back on one of the standard ones I don't remember the name but I was on that for a while until that problem was not found anymore. So I would think this may be temporary or I've know of some who had to take it for a problem that continues. So unfortunately we all realize that things can always change and will need other treatments as our journey continues.
How is He handling it? I know I had a lack of appetite when I was on it. Plus when it was a high dose it made certain foods lack flavor. I was so happy when they started reducing the dose as that's when food problems became better.