Yes the wait is hard. We are in Madison WI. The Cancer Center here first had to apply to be part of the expanded access program (EAP) which I think they did in May. In June Mike's doctor told him it would be a few weeks or months (they were not certain). In July Mike's cancer has spread to 3 organs, the old chemo is not working, he has not had chemo since 6/18. On July 9 the doctor (who had already submitted Mike's name) said he would reach out to the research team, hoping Mike could start in a couple weeks. The research team reached out after 2 weeks, another week of tests and interviews, if he is found to be "eligible" they will order the medication which could take 2 or 3 weeks to get. Sorry but it is a waiting game. Keep reaching out to the doctor for updates or see if there is a Plan B while you wait.