@hello1234

Today, 07/31/26, he will start the prednisone 5mg daily, with Tac BID, no Everolimus. Just picked up prednisone Rx last night. Home neph says to take in in the a m. Should have started prednisone yesterday but didn't get a call from home neph, until I texted to ask what Mayo's plan(like i was saying home neph is very busy doing a million things at a time!). So I'm glad I reached out to him yesterday - i normally don't like to text him unless necessary.

Anyways, this morning hubby will go in for blood transfusion. Hopefully he will feel better and his hemoglobin will gradually recover . His hemotologist follow up is in 3.5 weeks.

You mentioned something earlier about digging thru history notes on the Mayo patient portal to see what doses he was on with Myfortic. I'll have to spend some time looking thru it to find the exact dose. I also have some leftover Myfortic scripts I can check the bottle label for dose.

BTW, I just placed a 90 day order of Everolimus(generic but expensive drug ) and was told to hang on to it because may re use in future, per home neph. It was delivered yesterday, the same day was told to pause it! We will discuss more in details about possible drug change/remain on Everolimus at next appmt with home neph.

My hubby had a really difficult time managing blood sugar and weight with prednisone in his txplant regimen. The other disadvantages of prednisone are thinning bones, puffiness, insomnia, etc. Will have to tolerate it for a time but hope Mayo Az/home neph can help find a drug to replace it permanently.

One other thing - I was on my facebook support group and compare to others who are currently on Everolimus, my hubby's increased dose of 1.25 mg is not that large compared to some currently of 3 mg. As stated in the Everolimus common side effects, the degree of anemia varies individually.