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THANK YOU for that Ernest. My fatigue limits daily activity and ability to walk more than20 feet. It causes my heart to race and leaves me breathing heavily. Heart and lungs are good. Hopefully, ongoing med changes and treating cmv will help. Congratulations on your transplant.

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Replies to "THANK YOU for that Ernest. My fatigue limits daily activity and ability to walk more than20..."

@kahlor, I am trying to remember how I felt when I was 3 months post transplant, and what I do remember is that my energy level did not allow for me to over-do my activity (PT or a walk or errand) I quickly learned that I needed a day of rest between my active days. My strength returned slowly, but my endurance and energy followed. I do remember that at my first return to Mayo for my 4 month checkup, I was prescribed either Iron (or maybe ferritin) because I was slightly anemic. I don't take that anymore, and am now 17 years post transplant.

@kahlor, When will you be having a follow-up with your transplant team? I know that they will want to adress your shortness of breath and racing heart after a short walk. I also notice that you mentioned treatment for cmv, have you asked the doctors whether that might be causing your symptoms? (If you are a transplant patient at Mayo Clinic, you can send a message/question, on the patient app, to your coordinator with any questions between appointments.
Welcome to Connect!

@kahlor Wow. That's what I was going through before transplant. Just getting up to go to the bathroom was a chore. Balancing out my blood pressure helped me gain more energy. Hang in there. I'll be praying for you.