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This pain started years ago and got worse and worse and now I can’t hardly breathe after I eat hardly anything….I am sticking with watery soft foods but I went from 250 ibs to 135 in a year and a half 100 ibs loss in one year. It is located on left side mostly it occurs usually within the first 15 minutes of eating and lasts for hours and hours most 6-8 hours there was one day it went from 4pm until 6am the next day.
Heating pads work decently but I cannot sit up at all. Also cannot do any walking cleaning or sitting or I am breathless and my veins bulge…my heart beats out of my chest and the next day my whole core feels like it was beat with a bat. I have went to every specialist I’m out of answers. I’ve been diagnosed with POTS and EDS and will see a EDS geneticist in October due to them thinking I may have VEDS…I’m scared and weak and I am afraid I won’t make it to October….Mayo denied me and that was my last hope…. I’m in so much pain I’m afraid to eat and I’m losing the will to fight…I have 3 daughters who need me and a supportive husband and all I do is lay on a couch. I need help and no one is fighting for me but my family…
Replies to "This pain started years ago and got worse and worse and now I can’t hardly breathe..."
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@kjrybolt - welcome to Mayo Clinic Connect. I moved your post here to this existing discussion about abdominal pain so you could chat with others who've had similar experiences:
- Abdominal Pain https://connect.mayoclinic.org/discussion/abdominal-pain-4/
Fellow members such as @minnesota10 @debbadoo2672 @roch and others may have ideas about being afraid to eat due to pain from their experiences. Glad to see you also connected with @standinginfaith.
If you are replying by email, click on VIEW & REPLY so that you will be brought to the new discussion. I suggest reading previous posts and posting yourself, as you feel comfortable.
You mentioned you will have a EDS geneticist appointment in October due to them thinking you may have Vascular Ehlers-Danlos Syndrome (vEDS). Do you know what you will be doing in that appointment? If so, what will that look like?