@hello1234
Yes CBC hemoglobin went up a bit 8.4 to 8.6 but different labs. The former is UCLA and the latter Quest. Now in the hospital waiting for hubby to recover from GI procedures. The UCLA GI doctor is greater says hubby has clean colon but found some minor ulcers in stomach lining. Gi dr will prescribe medication which should clear up. GI doctor has ruled out internal bleeding so that's a good thing.
Next home neph says to see hematologist to test bone marrow is working well. One of the labs shows the reticulocyte count is low but home neph thinks it's cause the Everolimus is suppressing the count. I suspect the hematologist is going to do bone marrow biopsy to test. If biopsy comes back with bone marrow functioning properly then it's got to be the Everolimus. Home neph says he personally agrees that it's Everolimus but have to prove to Mayo Az it's not not these other factors that could be contributing to anemia. Hope they get this sorted out soon. If hubby has to meet with Mayo Az, I'd rather start the process now to get appointment with Mayo Az transplant neph. They will have to be the ones who can determine what meds to switch to or what dose of Everolimus is OK to keep hubby's kidney from rejection. Again, home neph cannot make this determination.
Home neph also says we will know the meds is the culprit if the reduced dose of Everolimus is going to improve hemoglobin GRADUALLY. Next appmt with him is 09/01/26, says it's OK to be on reduced dose for a few weeks.

Did your home neph say it was OK for you to be on a reduced dose? Did you work directly with your transplant center on the change of dosage?

I'm sitting here in waiting room for them to discharge hubby. Sorry if I'm being redundant and not making much sense. Love to hear you inputs!