← Return to Gary Passed Away: Some thoughts on my hospice experience

Discussion
Comment receiving replies
Profile picture for memoriestomoments @memoriestomoments

@brandysparks
A quick set of thoughts.
I would ask what, given their extensive experience, they anticipate as the specific changes that would likely be made in your mother's care if she goes into hospice-- in terms of: Medications given that s/he cannot prescribe now( do they think she needs or is in imminent need of strong pain relief?), equipment (hospital bed?), assessments, additional care, other.

It is important to know that Hospice does not provide additional physical caregiving attention outside of: nurse visits, and people who come to to do bathing. There are hospices that run facilities where the patients board. I don't know about those. Most hospice services are delivered to the house or the facility where the person is housed. Clearly, we had in-home hospice so I don't know anything about the other cases.

The greatest benefit is the 24 hour access to nurse advice (and follow up visits) to adjust comfort treatment as symptoms change. You are not on your own trying to figure out what to do and you do not have to wait to reach your doctor or order a prescription. In a care facility I don't know how that works. Do you need to trust that the staff is watching for this and using hospice fully to keep your mother comfortable? Do you have access to the hospice nurse yourself?

Another great benefit is an assigned nurse who visits your person regularly and therefore knows them and the history. At the outset, I was asked how often I wanted actual nurse visits. It first settled on 2 times per week. When they think the end is near the company I used increased that to daily. They can check on things like making sure that there are no emerging bedsores, take vitals to assess changes, make suggestions on how to position them in bed, etc.

There is also a hospice doctor for all the setting and adjusting of the medications and it was great that she was in calls with me and the nurse and even came to see Gary.

A much bigger topic that I cannot do justice right now: What are your mother's wishes, and yours (if you are her Legal Medical representative) about prolonging life. Starting hospice service is first and foremost a declaration that you/she do not want to intervene medically to treat any damaging medical condition that exists or arises. Regarding Eating: There is a lot of good reading to do about this. At end of life the body starts slowing down and digestion is one of the things that slows. People eat less and sometimes people stop eating altogether because they no longer feel hungry. We all tend to see feeding our loved ones as the key thing that we can do to express our love and care. I had to adjust that thinking and help my caregivers adjust to not pushing food on Gary .

Existing medications. yes, you might ask the doctor which existing medications would be continued under hospice. We kept all of them at first and then cut some out in consultation with the hospice doctor over time. So yes, we had to continue to pay for those out of pocket.

Jump to this post


Replies to "@brandysparks A quick set of thoughts. I would ask what, given their extensive experience, they anticipate..."

@memoriestomoments
I hope that you find comfort in knowing that you and Gary shared a beautiful life together, and that you provided him with the best care possible during his final years. May the lifetime of wonderful moments in your memory bank sustain you as you navigate life without your beloved partner.

Peace be with you,
George's Wife

P.S. I just saw your post this morning. Not knowing that Gary passed away, I recently sent you a private message.