I do not have stiff Person syndrome, but I have very stiff tense neck - contributing factor to migraines.
I read where it mentions stiff Person syndrome "treatment: There is no cure, but symptoms are managed with benzodiazepines (e.g., diazepam), muscle relaxants (e.g., baclofen), and intravenous immunoglobulin (IVIg). Physical therapy is also crucial for maintaining mobility." John Hopkins Medicine

My Neurology referred me to Physical Therapy - Dry Needling (Acupuncture with electricity) - WONDERFUL After 1st treatment, first time in 4 years I did not have migraine or headache (lasted about 4 hours) - also mobility was little better. With weekly (sometime 2x weekly) treatments, the relief was longer. After 9 months, I only go once a month - I can feel stiffing a couple days before next treatment. (I pay $23.00 for the needles and insurance pays for the PT part) The Neurologist was very pleased with results and added Baclofen (muscle relaxer) 10 mg 3x/ day (and other prescriptions). The PT also gave me a number of stretching exercises. I call it my maintenance program.

Best wishes,
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