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Thyroid Issues

Diabetes & Endocrine System | Last Active: Oct 11, 2017 | Replies (18)

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@gailb

@parus. When I was first given Synthroid, my dosage was too high. My heart was pounding and I was agitated with trouble breathing smoothly. I was having mini-panic attacks as well. Just reading your comments brought those feelings back. My PCP told me to cut my pill in 1/2, which I did, and 2 days later I was still having symptoms, although a little bit better. So, I cut my pill in 1/2 again; still having symptoms with 1/4 pill. So, I completely stopped taking the Synthroid. Only then did I feel OK. When they tested me the next time, they discovered that there was an error in my previous test results, and my thyroid was fine. I didn't need thyroid medication until 7 years later! But my symptoms with the unneeded medication sound like yours.

My recommendation is to cut your medication in half, or go back to your previous dosage. It's very scary when your body feels out of control and like you can't do anything about it. There are times when you have to override your doctor's advice! It's your body and you have to take care of yourself. Your doctor can't feel what you feel. She's obviously wrong and you need to find another doctor who is more confident and doesn't need to be "right" at all costs.

Since you didn't respond to the post previous to mine, I hope you are OK, and maybe have already solved the problem. Best of luck, Gail B Ledesma

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Replies to "@parus. When I was first given Synthroid, my dosage was too high. My heart was pounding..."

@gailb @parus Interesting that you say this. I have been on a small dose of levothyroxine for a number of years now. After transplant I was getting such frequent and severe "hot flashes' that they suggested that I speak to my PCP about lowering my dose of that. I now cut my pill in half and when I had a thyroid test it still seemed like my level indicated that I was close to the borderline of being too high. I asked my PCP if I should drop it entirely and he said no, but I just decided today that I am going to give that a try because I feel hyper all of the time until I basically collapse, and my BP is somewhat high - @ 150 systolic, and in the 60s diastolic. So, we will see what happens when I drop it. My PCP would not approve of my taking this in my own hands but then I don't think he likes me anyway so what's one more thing for him to not like me for?
JK