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New nodule

Lung Cancer | Last Active: 1 day ago | Replies (27)

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Latest news. No kras mutation so separate primary. But almost more important is tracing my original pathology. I had 2 tumors same lung. Lobectomy at Moffitt. Tgey staged me 2b, intrapulmonary metastasis. They sent tissue for molecular analysis. I transfered treatment to Florida Cancer Specialists and they obtained tissue from Moffitt. There was always a problem. Moffitt showed kras 12c. Fcs showed kras 12d and tp53. My doctor thought lab error.
I finally, 2.5 years later unraveled the pathology trail. It seems that the 2 analysis were done on 2 separate tumors! No lab error. Misdiagnosed. Seems I had multiple primaries and not intrapulmonary metastasis. So chemo and keytruda for nothing. Im still having adverse effects from keytruda.
But good news is that new one is independent also. That makes me feel a lot better about the 3 ground glass nodules in my other lung, particularly now that I know about Aliya pef.

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Replies to "Latest news. No kras mutation so separate primary. But almost more important is tracing my original..."

@ladylennie I'm relieved that you finally got your answers and that your cancers have been caught early. but how frustrating to be misdiagnosed and have had to endure extra treatment. I hope you can celebrate the good part of the news and feel like you have a treatment path forward that works for you.

Hello @ladylennie,
I’m so sorry you have gone through all this… I can’t imagine how stressful this all was for you. It feels Immeasurable!
I’m glad you were able to finally figure everything out, a huge accomplishment!
Hoping your adverse symptoms improve soon.
Huge hugs your way 🤗
Daisy