← Return to Spinal fusion w/pelvic fixation (T-3-pelvis), having trouble. Ideas?

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Profile picture for kadeoh! @karenoharmon

I know this fear and this pain so well! I'm so sorry you guys are walking through this! Tues I will be 9 months post op. I turned 60 this year and prior to surgery the pain was getting the best of me. I could not walk more than a mile without having to stop. Standing for lengths of time was getting difficult. Sitting for any length of time and I could not sit still. Sleeping through the night had not happened for a couple of years~. Chronic pain was the constant. It was eating away my life. So surgery was the option I chose after trying every other conservative treatment. I knew it was going to be a doozy, but I didn't plan for a year of recovery. Get that through your mind that you are going to be recovering for a full year. That means put off any plans that you are going to rush through this, or pass Go and collect $200 before a year is up. I know we all read about the people returning to their pre-surgery routines of lifting, running, dancing, climbing mountains, etc. - those are nice and wonderful to think of, but I think that ended up sabotaging my need to rest, recover and plan for the light recovery my body needed. I pressed too hard too soon and that is not what my body needed. Strengthen lightly, walk conservatively, and protect the fusion at all costs. Switching to this plan has felt better mind, body, and spirit. This is going to be a long year. Get through your brain and allow for it to be a year of healing. 365 days of you caring for yourself in such a way that you heal in ways you had not imagined. My surgeon was wonderful, but did not convey this idea to me. I wish he had. I wish the mental aspect of this process would have been tended to as much as the fusion part. Or even the pain part. This is the area I would stress more. All that to say, if you move forward with the surgery, prepare your mind for a year of recovery. This surgery is a mind, body and spirit experience. Wish you all the best.

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Replies to "I know this fear and this pain so well! I'm so sorry you guys are walking..."

@karenoharmon

Hello Karen, Really well-stated and, as a fellow spinal fusion patient, I totally agree.

Best Wishes!

Nadine

@karenoharmon
Hi Karen! I have been off this site for a few months because other things going on in life, but I’ve been thinking about you and wondering how you are healing😊
What you said here is absolutely perfect! It says it all.
I am now 20 months postop and finally making good headway on the skin nerve pain. I think the last time I updated you, my physical therapist was starting to break apart the scar tissue and it was helping. She isn’t trained in myofascial release, but doing a lot of similar work as I first learned from @jenniferhunter
The past couple months, she has been working deeper along the incision line where the surgery scar tissue grew, and it is releasing pressure on the nerves across my back. She starts out with ultrasound treatment, and then goes into the muscle/scar work.
So yay! Great news that pants don’t hurt my back and that I can use the back scrub brush in the shower without it hurting. And the numbness is completely gone. And of course, none of it compared to the pain that I had before surgery. All of that is gone and it’s so wonderful to be able to work on the ranch and hike and ride bikes and have a normal life again!
So how are you doing? Are you making progress with your skin nerve pain?
I recently saw a couple people post the same symptoms on a Facebook spine surgery group, and I’ve tried to share my experience with them too. It doesn’t sound like it’s that common, but has more to do with the fact that our bodies grow a lot of scar tissue.
Wishing you the very best!
Sherry