We have tried about 8 medications with none helping and only Clonezepam helping a little with anxiety and some muscle tension. We recently attended a forum led by the Dystonia Research Foundation at Northwestern Hospital in Chicago. Dr. Cynthia Comella of Rush Medical Center showed a presentation which listed many drugs and their efficacy for dystonia patients. Sadly most didn't work well. Please contact the foundation to get a copy. It is eye opening.

Does Botox not work? I built up antibodies on Botox. The Medical College of GA, gave me too much in too short a time. Have you tried Myoblock? It helps, but Botox is better. I take Klonopin and the doctor is pushing Artane on me. She won't increase Klonopin and I'm not getting a therapeutic dosage. Artane does not help...it makes me shaky! All I need is shakiness when I'm already shaky. Remember, doctors get paid for pushing Pharma Drugs. Hospitals and doctors get BIG BUCKS for pushing drugs from Pharma Companies. Be Warned.