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Transplant patients - anyone get anemia or Parvo Virus?

Transplants | Last Active: 8 hours ago | Replies (68)

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Profile picture for Dana, Volunteer Mentor @danab

@caretakermom I was on Blue Cross Blue Shield Federal plan for transplant and was excellent for the transplant and first year. but after that it became non participating for MAYO clinic. that's what caused the problems. if I would have gotten my treatments at my Hemotologes clinic as they were participating in BCBS then it would have gone smoothly. It got a bit strange as this was during COVID and getting the prescription filled was the hard part. Mayo as a large hospital could get it easier as a pharmacy than my local Hemotoligy clinic which was on the mercy of an outside Pharmacy. So I was concentrating on that part but not the part about being pre approved which I was with BCBS but as an non participating Hospital at that time (after the first year) the approval did not really mean they would pay for the medication.it got really weird.

Now since I did get approved for disability from my job as a communication technician which required me to climb towers and I was already 58 my company was not able to accommodate me with a heart transplant so I got the approval for disability and after 2 years on disability from Social security I got Medicare. I've had it ever since. now on Medicare which is acted by Mayo I don't have those problems anymore. most things now I do at Mayo are covered. But only things having to do with transplant. I haven't needed any IVIG now on Medicare so I'm not sure if Mayo would cover it as it's really a blood disorder not directly tied to transplant. but maybe it is since I got the parvo from the heart. it hasn't come up again anyway. so sorry I can't answer your question.

As for doses and such Mayo has always worked with my outside doctors when it comes to dosage and other related needs. so I'm not exactly sure who decided the dose as both my Hemotologist and Mayo were sending messages back and forth.
As for location I had the actual infusions at Mayo Phoenix , But Ialso could have had it at my Hemotologist Clinic which is a Cancer center in Gilbert Az. That's where my Hemotologist who is also a cancer doctor (what ever they are called) So I'm thinking you could find a place near where you live to have the actual infusions.Most Cancer clinics are infusion centers also.
hope that helps.

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Replies to "@caretakermom I was on Blue Cross Blue Shield Federal plan for transplant and was excellent for..."

@danab

I think the "cancer doctor" is called an oncologist. My husband will be seeing a UCLA hematologist/oncologist who's office is local and there is an UCLA infusion center in the same medical building so that's a good thing. I'll be sure to ask about insurance coverage re IVIG at hematologist consultation.
My husband had Medicare(and employer insurance) at time of his kidney transplant but no longer qualifies after 3 year post transplant. I remember the Mayo Az transplant coordinator telling me that with Medicare it's always easier/faster to get prior authorization than other insurance with respect to IVIG infusion work. Hubby continues to work full time so we have Anthem Blue Cross PPO and fortunately Mayo Clinic is in-network in our plan.