Connect
← Return to Transplant patients - anyone get anemia or Parvo Virus?
Discussion
Transplant patients - anyone get anemia or Parvo Virus?
Transplants | Last Active: 1 day ago | Replies (68)Comment receiving replies
@caretakermom 🥰
As always, I think you are doing an excellent job taking good care of your fabulous hubby!
Please keep me posted as you check off each box this week. Colonoscopy and Endoscopy results, and most importantly the Parvo blood test result from Quest.
I am confident that after all the results are in, your local neph will reach back out to Mayo Arizona for a consultation with the transplant physician in clinic. Once the results are available, Mayo will know whether hubby needs a dosage adjustment and IVIG infusions like @danab , or a a med switch, or something else. Mayo Transplant sees this immune suppression viruses, and how to resolve them, all the time.
BTW, your hubby is exactly my age. I asked about his age because I was concerned for the safety of a colonscopy. But it turns out, he is very young, so no worries there!
I am looking forward to hubby feeling better in a couple of weeks and this ordeal being behind you both. You and hubby will both feel better knowing what is causing the anemia and starting the treatment plan.
It will make me feel much better knowing that hubby is on a path to feeling better too!!
Please keep me posted as the results come in.
Replies to "@caretakermom 🥰 As always, I think you are doing an excellent job taking good care of..."
It's 12:45 AM 07/28/26 and just notified test results completed.
Parvo Virus PCR is "undetected". Hubby has GI procedures Tuesday around noontime so we'll have to wait for results to rule out internal bleeding - I don't think it is.
Hubby also seeing hematologist/oncologist Wed afternoon hopefully he'll do a biopsy to show bone marrow is functioning properly.
If all the testings come back normal then it's got to be the Everolimus. Home neph says Mayo not happy staying with lower dose so IDK what is the solution. Mayo Az will have to make the meds change/adjustments because home neph cannot recommend what medication to switch to - he's NOT transplant specialist! We do not have office visit again until 09/01/26 which is about a month from now.
I'll contact our neph first thing in the morning re test results - I feel so bad about bugging him because he is extremely busy. Am lucky he gave me his cell number.
What else do you suggest I can do? Very worry!!
Connect
@hello1234
I will most definitely keep you posted. Will contact you/group again if we run into any more issues. I do feel so much better after getting support from all who responded to my post. Thank you for listening and giving your inputs.