@hello1234

Home neph ordered the test after talking to Mayo Az neph. I'm not sure home neph is familiar with this virus; otherwise, he would have added to his normal lab test orders. He tests for CMV, BK virus, and Epstien Barr, but no Parvo. I suspect from here on out he will adding it to his lab order on regular basis because it can recur.

Regarding the transplant meds, the home nep says Mayo Az has to be the one to determine drug dosage, trough level and whether a change of meds(Everolimus) is warranted. Remember a few years ago I told you hubby kept getting CMV recurrence when he was on Tac and Myfortic? At that time it was within 1st of txplant so Mayo Az was following hubby. They adjusted the Myfortic down each time when CMV tested positive, hubby would take the drug for the CMV, then when it clears Mayo would then raises Myfortic back to original dose level at which time CMV recurred again. This went on for about 9-10 months, finally was told by transplant neph to switch from Myfortic to Everolimus.
I hope hubby is not having the same issue with Everolimus - adjusted dose causing Parvo Virus. Because Mayo Az will probably have to dictate what medication to switch to, and I don't think they'd want to do that. They also don't want to lower the trough level for a smaller Everolimus dose; neph says Mayo "not happy" with pre-anemic dose!!
I guess we'll have to take it 1 step at a time to see what is the real culprit of his anemia. Could be
1. higher Everolimus dose 2. Parvo B19 virus. 3. bone marrow disorder?
Neph says Mayo does not believe anemia is caused by Everolimus per home neph.