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Transplant patients - anyone get anemia or Parvo Virus?
Transplants | Last Active: 57 minutes ago | Replies (67)Comment receiving replies
Thank you for responding. Regarding the authorization from insurance, did you have a hard time getting insurance to cover it because you did not get prior authorization? Is this Medicare or employer insurance?
You say you got your infusions via Mayo but had you got your infusions locally, would the local hematologist have to work with the transplant team to set the IVIG dose? Hoping the UCLA hematologist can reach out to Mayo should he needs guidance from Mayo transplant nephrologist. Don't know if we are expected to make the coordination. Our home neph would not be able to make decisions re IVIG infusion dose.
At this time, we are waiting for the Parvo B19 PCR test result. I'm not entirely sure my husband has it because his only symptom is anemia - his CBC panel shows all blood count low/out of range. He is not experiencing any pain such as headache or joint.
What were you symptoms of Parvo B19? It sounds like your team warned you that you would have it since your donor had it, so they were watch out for it. In our case, we have never heard of it until Mayo Az told home neph to check for it last week!
I will be asking more questions as they come up. Thank you for volunteering to shed lights on this virus!
Replies to "@danab Thank you for responding. Regarding the authorization from insurance, did you have a hard time..."
@caretakermom, it sounds like your local nephrologist (home neph) is coordinating with the Mayo Clinic nephrology. If you have any questions about your husband's transplant care, don't hesitate to contact Mayo Clinic through his patient portal account or with an appointment coordinator at Mayo AZ https://mayocl.in/1mtmR63
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@caretakermom I was on Blue Cross Blue Shield Federal plan for transplant and was excellent for the transplant and first year. but after that it became non participating for MAYO clinic. that's what caused the problems. if I would have gotten my treatments at my Hemotologes clinic as they were participating in BCBS then it would have gone smoothly. It got a bit strange as this was during COVID and getting the prescription filled was the hard part. Mayo as a large hospital could get it easier as a pharmacy than my local Hemotoligy clinic which was on the mercy of an outside Pharmacy. So I was concentrating on that part but not the part about being pre approved which I was with BCBS but as an non participating Hospital at that time (after the first year) the approval did not really mean they would pay for the medication.it got really weird.
Now since I did get approved for disability from my job as a communication technician which required me to climb towers and I was already 58 my company was not able to accommodate me with a heart transplant so I got the approval for disability and after 2 years on disability from Social security I got Medicare. I've had it ever since. now on Medicare which is acted by Mayo I don't have those problems anymore. most things now I do at Mayo are covered. But only things having to do with transplant. I haven't needed any IVIG now on Medicare so I'm not sure if Mayo would cover it as it's really a blood disorder not directly tied to transplant. but maybe it is since I got the parvo from the heart. it hasn't come up again anyway. so sorry I can't answer your question.
As for doses and such Mayo has always worked with my outside doctors when it comes to dosage and other related needs. so I'm not exactly sure who decided the dose as both my Hemotologist and Mayo were sending messages back and forth.
As for location I had the actual infusions at Mayo Phoenix , But Ialso could have had it at my Hemotologist Clinic which is a Cancer center in Gilbert Az. That's where my Hemotologist who is also a cancer doctor (what ever they are called) So I'm thinking you could find a place near where you live to have the actual infusions.Most Cancer clinics are infusion centers also.
hope that helps.