@caretakermom 🙂
I think this is going to turn out to be easy to solve after all this testing is complete.
I think your local nephrologist is very smart to back down on the Everolimus to see if that helps to solve the anemia.
Has your hubby taken a CareDx Allosure blood test (or similar test) to determine his risk for rejection?
It may be his target range for Everolimus is set a little too high for his body and the increase in medication is causing unnecessary over immune suppression.
That's what happened to me.
I got sick with CMV.
I got sick with the BK virus.
I was running over to the local cancer center for shots to bring the numbers up.
All do to over immune suppression.
Once Mayo adjusted the meds down, all was beautiful! I take a CareDx Allosure blood test every 90 days to confirm low risk of rejection.
Now that your local nephrologist has wisely adjusted back down, has hubby retested?
Don't worry about the colonoscopy. It's not unusual for the Cologuard to be positive for a little blood. How old is hubby?
When will we hear back about the Parvo?