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Share Your Brain Tumor type & Years since Diagnosis

Brain Tumor | Last Active: 6 days ago | Replies (118)

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Profile picture for gulleygirl @gulleygirl

In 1998 I had craniotomy for what they thought may be a meningioma, but it was a very rare hemangiopericytoma. To date, I have had 3 craniotomies, 2 radiosurgeries and 6 weeks of radiation to treat 5 of the same types of tumors in same area. It is now called a solitary fibrous tumor. I currently have 2 more tumors in the temporal lobe which they have been watching for 2 years as surgery could cause more harm than benefit. 10 months ago I was hospitalized twice for TBIs sustained after blackouts. I was subsequently diagnosed with epilepsy. Since last TBI I have been unable to taste or smell. See ENT on Tuesday. Anyone had similar experience? Thank you

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Replies to "In 1998 I had craniotomy for what they thought may be a meningioma, but it was..."

@gulleygirl, you have been through a lot of treatment. You may be interested in this related discussion:
- Malignant Solitary Fibrous Tumor of the brain https://connect.mayoclinic.org/discussion/malignant-sft-of-the-brain/

Also see these support groups related to other related conditions:
- Epilepsy & Seizures Support Group https://connect.mayoclinic.org/group/epilepsy-2bb359/
- Tramautic Brain Injury (TBI) Support Group https://connect.mayoclinic.org/group/traumatic-brain-injury-tbi/