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Advanced NETs: Acceptance of living with NETs
Neuroendocrine Tumors (NETs) | Last Active: 1 day ago | Replies (9)Comment receiving replies
It is a sobering video, more emphasis on the phycology and palliative stage of NET treatment. It feels it presents a somewhat difference between the US and UK treatments. It is an oder one, many US doctors say don't listen to the online prognosis forecast which tend to be based on the years in the past, not the newer treatments.
Replies to "It is a sobering video, more emphasis on the phycology and palliative stage of NET treatment...."
@owl3456 Hi and welcome to Mayo Connect. It seems like you are talking from experience. Do you have NETs? If so, what are you diagnosed with? Thanks.
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@owl3456
Thank you for your input. Good point.. It is true that for most people who have NETs that the majority of people will die with NETs rather than from it. The video is not conducive to them
And it does seem to be anolder presentation which is another good point. Now the UK and US have many more treatments and more coming round the bend. For me the video was not a prognosis but did speak to the fewer folks for whom it applies. Therefore my concern in posting it. Any other pertinent resources dealing with this particular situation appreciated.
In addition, for the fewer, it might help explain to friends why the decision has been made.