@profdoyle -- Marcus, my wife suffered a TBI four and a half years ago and, with my help, regularly posts to this chat group. We just posted to MargaretAllen above. I don't know if Mayo has a chat group for caregivers. If it does, I'm hoping Colleen will direct us there. If it doesn't, it might be good to have one because for every person with a TBI, there is usually a loved one who is going through it with them. I've been a lawyer for 46 years, a civil rights lawyer for the last 25 years of that, and caregiving is the hardest, most taxing and draining thing I've ever done. It strips you down and shows you who you really are as a human being. Like you and your wife, we've really been through it, and the ignorance of the medical community where we live has just been shocking. It's easy to start feeling as if you're on your own.

I strongly recommend the book The 36-Hour Day. It's been a big help to me. I'm also reading to my wife The Body Keeps the Score, which is about the myriad ways in which trauma registers in our minds and bodies. It's been fascinating, informative, and oddly comforting. I'm happy to help, share with, and learn from you and all the other caregivers out there.