Hi @calispike
So many things you mentioned I could have written; such similar behaviors.
I tried to get info to the neurologist ahead of our first visit last week, and his office wouldn't accept them (stating they could get lost in the mail; lame excuse). So, I brought my folder of info with me that I prepared ahead of time, and gave it to his assistant when she was getting my husband ready for his visit. The neurologist left my packet in his office when he came to see us, and had to go back and get my notes (that I'd spent quite awhile prepping for him), just so we could discuss my husband's medical history (I had to say things like, "The answer to that question is in the packet I brought for you."). Insert angry emoji!
To me that felt dismissive, as if he probably hadn't even glanced at the notes before stepping in to see us. I couldn't help but think, why did I bother putting so much effort into this packet of info if he's not even really referring to the helpful info during our visit?
Perhaps I should look at it from another point of view. I know medical personnel are forced to move patients through their visits quite fast, so perhaps the neurologist didn't have time to read all the items I brought.
If you're interested in what I brought along in that packet, read on:

-Neuropsychologist's diagnoses over the past few years, as diagnosis changed from mild cognitive impairment to frontotemporal dementia (FTD)
-MRI results
-C/T scan results
-pTau 217 blood test results (negative)
-Dementia Association's FTD Symptoms & Staging Tool, the FTD-SST (my husband was mostly at one stage and had several symptoms from another stage, and a few random ones from later stages, so guessing the stages they pass through are not clear cut)
-Dementia Association's Dementia Behavioral Assessment Tool (DBAT)
-The Bristol Activities of Daily Living Scale (BADLs)EP Test
-Summary page of noted changes in behavior and health over the past year (taken from anecdotal notes I take whenever I notice something that is 'off' about my husband, a change in his behavior, actions or personality).
Other than that I just sign up for every free class for caregivers, watch every video folks in the know point me to, attend several support groups and log onto this site daily.
All the best to you. 🌺