Stem cell treatment for small fiber neuropathy

Posted by jwr @jwr, Mar 19, 2025

I have "ideopathic"small fiber neuropathy confirmed by punch biopsy. I believe it was caused by an unintended chronic exposure to high levels of carbon dioxide from an unvented gas construction heater.

I am considering, out of desperation because nothing else helps, stem cell treatment in Mexico. has anyone else tried this experiment?

Interested in more discussions like this? Go to the Neuropathy Support Group.

John, Volunteer Mentor | @johnbishop | Jul 23 7:30am

In reply to @sikocesca "@sikocesca Please give me the information for Dr. Ghalili I would like to see him and..." + (show)

@sikocesca - I don't have any experience to share but here is the website that discusses Dr. Ghalili's treatment - https://regenerativemedicinela.com/treatments/stem-cell-therapy/.

lzimms | @lzimms | Jul 23 7:32am

In reply to @sikocesca "@sikocesca Please give me the information for Dr. Ghalili I would like to see him and..." + (show)

@sikocesca
https://regenerativemedicinela.com/
Fran, the above is the link to their website—hope it helps 🥰
We had to fly across the whole country (from Virginia to California) but it was worth it to get our life back.

jthomas458 | @jthomas458 | Jul 24 9:39am

If anybody else tries Dr. Ghalili's treatment, please post about it. I just looked at his website, and I intend to check him out as soon as I recover from the pain pump surgery I just had.

lzimms | @lzimms | Jul 24 10:15am

In reply to @jthomas458 "If anybody else tries Dr. Ghalili's treatment, please post about it. I just looked at his..." + (show)

@jthomas458
You may notice in one of my responses that my husband had stem cells from umbilical chord. This was because he was 77 and did not have a lot of his own fat to use for stem cells, which is preferable if you are younger! It still worked ☺️

Mariette R. | @marietter | Jul 24 10:34am

In reply to @sikocesca "@hauser did it work" + (show)

@sikocesca I believe it. Medicare will not cover it yet, as they feel it is still under experimental use. They used to follow Blue Cross/Blue Shield and when they’d approve it, before (Medicare) they too would approve and cover it. Time will tell.

terryjee | @terryjee | Jul 25 5:56pm

In reply to @marietter "@sikocesca I believe it. Medicare will not cover it yet, as they feel it is still..." + (show)

@marietter so stem cells did work for your husband's neuropathy stopped numbness and cramps

Mariette R. | @marietter | Jul 25 7:51pm

In reply to @terryjee "@marietter so stem cells did work for your husband's neuropathy stopped numbness and cramps" + (show)

@terryjee You replied to me in error. Ask @jthomas458

sikocesca | @sikocesca | Jul 26 7:01am

In reply to @lzimms "@jthomas458 You may notice in one of my responses that my husband had stem cells from..." + (show)

@lzimms
Where did he go for the stem cell treatment using umbilical cord cells.
I do not think it’s done in the us and I think my own cells are too old to be beneficial.
Fran

lzimms | @lzimms | Jul 26 9:36am

In reply to @sikocesca "@lzimms Where did he go for the stem cell treatment using umbilical cord cells. I do..." + (show)

@sikocesca
Fran, I hope you saw the information above about Dr. Ghalili in Los Angeles. You are correct—if older, umbilical cord cells are used, not your own.